a little c

because I refuse to give it a big one

Posts Tagged ‘PET scan’

Running with scissors and eating all the paste

Posted by wendy on 2011/09/08

My blue period.

I’m just….gah. I’m restless today and tired and a little stabby and I think I need a nap and a time out because I’m not playing very well with others at the moment. I’m like an unruly kindergartener. I need a red and blue mat to nap on. And a coloring book. And my woobie. (I think CS4 is the adult equivalent of a coloring book, so I’ve been processing shots this morning to keep my mind occupied–it’s working so far. yay!)

I’m not sleeping again, and I keep saying that I’m going to get my Ambein prescription refilled (I’ve been out since March-ish), and I never do. I just try to slog through the non-sleeping periods and hope they’ll go away eventually (they do) because the last thing I wanted to walk away from cancer with is an addiction to Ambien. However, this one doesn’t seem to be going away as easily–it may be the one that breaks me and sends me back. Too many things on my mind. bah. October is coming up fast, though–and if I can hang on til then, I think I’ll be able to breathe.

Our dryer died this week (because that’s how life is rolling these days), so we decided in the interim to hang a clothesline outside as a new dryer is not happening for me right now. We bought it Saturday. Or Sunday. I can’t remember, but either way, it’s rained every day since, so I currently have clothing hanging in every doorway of the house. Classy!!

My PET scan has been delayed and rescheduled three times now–the camera keeps going down, so they have to get it repaired, and it’s kind of making me nuts. The next scheduled scan is for Monday at noon, and I’m hoping this one will work out–this no caffeine, high protein, low carb deal the day before is giving me these weird Atkins Diet flashbacks. I think I have Atkins PTSD.  Just knowing I can’t have carbs makes me extraordinarily anxious. I need my grapes in the AM people. NEED. And, yeah, there’s the need to get this done and over with. I need to get these results so I can stop thinking about the What If’s. Knowing a thing intellectually is easy–it’s the knowing it emotionally that gets me every time.

So, hopefully there will be a PET scan on Monday, and then I’ll see my onc on Tuesday. I’m going to push to get the port taken out this month. I’m ready. I’m done. It needs to go. Oh Port! You were the best frenemy I ever had. I can’t wait to drop your ass to the bottom of the English Channel, all Heart of the Ocean style.

That’s going to be a very good day.  So, you know..there’s bad stuff all over here, but there are also silver linings, and I do try to keep my eyes on those.   I’m better at it some days than others, but aren’t we all?

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The Tragics

Posted by wendy on 2011/08/31

I can barely lift my arms as I type this post (new BodyPump release–ow ow ow), but I must update, cause cool stuff is happening this week!  I saw my radiologist yesterday, and she pronounced the boobage free of any signs of fibrosis or any other hinky stuff, so I don’t have to go back for SIX MONTHS.  Can we all say YES!! together?  Cause..YES!!   There was a cute moment when the receptionist asked me if I preferred morning  or afternoon and I was all “Um…next February?  I have no idea what I’m going to be doing next February–I don’t even have a 2012 calendar yet.  hee.”

Tragic!!! Although, not so tragic that I didn't bother to put on lipstick before taking my picture.

I actually have loads of appointments to make this week.  Tomorrow, I have my baseline PET scan, then I see my oncologist on Friday.  (The camera is down at OMI, so my PET scan has been put off til Tuesday. ) I have to set up an  appointment with my gynecologist and then set up my next mammogram and it feels like a LOT of doctor-type stuff is happening, but there is a bit of comfort in knowing that the majority of what I have ahead of me is really just routine stuff.  There is a small bit of fear attached to the routine stuff now (WHATIFITCOMESBACK??) …but, I’m not going to dwell on it or let it overtake me.

I had a wonderful time away, and while I am suffering from a tiny bit of jetlag and a very large case of The Tragics (which consists of a lot of sighing and laying around looking like someone stole the stripes out of my peppermints), I’m doing pretty well.  My zenfolio subscription expires tomorrow, and I will not be renewing, (because food comes before internet toys), so I will take this time to thank everyone who bought an image from me, or passed the link along so someone else could.  Seriously, you guys helped me  more than I can say.

There is so much wrong in my life right now that the enormity of it occasionally crushes me, but there is also so much in my life that is right and good and wonderful….and I really do believe the good outweighs the bad.  It nearly always has.

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Good News.

Posted by wendy on 2011/01/26

My PET and bone scans were excellent-YAY.  I cannot describe the relief in the room–A and M were both with me when I got the news, which made an awesome moment even more stellar.

I will have 8 rounds of AC-T chemo (in fact, I start tomorrow, which manages to startle, terrify and excite me all at once–I love the M will be with me for my first treatment.  In fact, A is taking the day off as well, so I’ll have my two favorite guys with me.  Good things.).  We’re going to go every two weeks, which means I’ll go in the next day for a shot of Neulasta to keep my white blood cells up.   If the effects are too adverse for me to bear, then we may have to look at going out to 3 week intervals, but I’m keeping my fingers crossed for good reactions.

I would write more–I have loads of mental vomit that really really needs to come out, but you know, M is here with me and I am going to spend this one last day of normalcy with him and we’ll tackle tomorrow together.


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